Last night when J.D woke up and I laid him down to change his nappy and empty his bag, it struck me how though this has become our normal, it really is a very big thing. His small intestine exits through his stomach, is stitched to his abdomen, his large intestine the same on the opposite side. It is the former which releases waste. His colon is currently pretty redundant, producing nothing more than mucous, shrivelled and awaiting revival. Although we are used to the sight of a fleshy, red & bulbous nodule sitting on his body, I still find it difficult to think of him in terms of his organs, to imagine him laid out on an operating table, mid-laparotamy, deft and skilled fingers working on his bowel. My precious boy.

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